Grandmother to walk 450km for cystic fibrosis fundraiser

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(ABC Radio Adelaide: Brett Williamson)
But after seeing Tehya-Rose’s decline since, Ms Gascoine said she decided more had to be done.”The average life expectancy now is into the mid-30s … Grandmother Susan Gascoine is about to undertake an epic walk from Murray Bridge to Adelaide via Victor Harbor and the Fleurieu Peninsula to raise money for cystic fibrosis.”The family thinks I’m crazy,” the 70-year-old said with a laugh.She is walking in support of her granddaughter Tehya-Rose.”[Tehya-Rose] was diagnosed [with cystic fibrosis] when she was a couple of weeks’ old,” Ms Gascoine said.Last year, the dedicated grandmother walked from Renmark to Adelaide to raise money for the disorder.All up, she raised more than $15,000 for Cystic Fibrosis South Australia and the Cure for Cystic Fibrosis Foundation. Photo:
Susan Gascione’s walking boots in front of roses, the flower symbol of cystic fibrosis. so we have made a lot of progress but we still don’t have a cure.” She said she hoped to raise at least the same amount again this year.Granddaughter inspires through tough timesMs Gascoine said she would draw on thoughts of her granddaughter to keep her going on the 420-kilometre walk.”Sometimes I have to remind myself, when I feel like giving up, that I have to keep going [for her].”The other thing that keeps me going is that I have people stop on the side of the road, come and give me a hug and say, ‘thank you for doing this for my child’.”That gets me teary and I think it’s all worth it.”Ms Gascoine will set off from Murray Bridge on March 25, walking to Tailem Bend, Meningie, around Lake Alexandrina, Strathalbyn, Goolwa, Hindmarsh Island, Victor Harbor, Yankalilla, Myponga, Willunga, Aldinga and will arrive at Peace Park in North Adelaide on April 30.She will publish updates on her Susan Strides 4CF website.
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(ABC Radio Adelaide: Brett Williamson) ABC Radio Adelaide

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Brett Williamson

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March 21, 2017 13:56:56

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Susan Gascoine says she is walking in support of her granddaughter who was diagnosed as an infant.

Farming neighbours cultivate harmony across shared boundaries

Three couples celebrate 150 years of marriage
They don’t interrupt and they allow you to do it,” he said.”As long as we’re just in our work and fair with our neighbours and the responsibilities we owe to them, then everything is fine.”Neither man could identify any barrier between them, other than the physical barbed wire fence separating their properties.”Neighbours, in a lot of cases, are even closer than relations because you’re seeing them more regularly and interacting with them more regularly,” Mr Murat said.”And when you know that your neighbour is not doing well or is in need, you should help him with that need.”Mr Howe said having a good relationship with your neighbours was even more important when it came to farming.”It’s really important to get along with your neighbours, otherwise they can make life hard for you,” he said.”If you’re in town somewhere you can always sell your house and move somewhere else, whereas on a farm it’s not that easy to just sell up and move away from your neighbour.”

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Benjamin Murat, Peter Howe and Skender Murat walk off their morning tea in Benjamin’s gardens before getting back to work on their respective farms. (ABC Far North: Mark Rigby)
Love thy neighbour, no matter the differencesMr Murat said his faith had no impact on his relationships with any of his neighbours, and especially not the Howes.”I find that when people know that you’re a practising Muslim, they respect what you’re doing. (ABC Far North: Mark Rigby)
‘Differences aren’t that deep’Understanding between the two neighbours has helped both families prosper in their respective farming endeavours.”We’re upwind of them [the Murats], which means they get all our chemical drift, dust and water and they’ve never whinged or complained,” Mr Howe said.”They’re just easy to get along with.”For Mr Murat, the explanation for such a long-standing amicable relationship is simple.”The differences aren’t all that deep, really,” he said.”Apart from nationality, apart from some religious aspects of our lives, there’s so much commonality between the two of us.”As human beings we all have the same interests at heart … and these slight differences we might have are inconsequential when it comes to living together, particularly as neighbours.”

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Serbian Orthodox priest finds cultural harmony in Australia Despite differences in the crops they farm, their religions and even their appearances, the Howe and Murat families have a lot in common.The Murat family are devout Muslims and the Howes identify as Christians, but the way in which their families came to be in Australia are almost identical.Benjamin Murat’s father left Albania in the late 1920s, while Peter Howe’s grandfather left Italy around the same time.Both men’s relatives laboured on farms in various locations around Australia before saving enough money to purchase their own properties on the Atherton Tablelands, west of Cairns.And, while the two very different farming families have shared a fence line for only a few years, they have known each other for decades.Mr Howe describes one of his first interactions with Mr Murat’s faith as “a funny story”.”We were doing some contract work with the Murats, picking up rocks,” he said.”It was about lunchtime, around 12 o’clock, and we had an issue with the rock-picker, so another fella and I came into the shed looking for Ben.”We walked into the shed being pretty rowdy and here was Ben, kneeling down, praying to Mecca — we sort of shit ourselves, we didn’t know what we were supposed to do.”We snuck out of the shed and pretended we weren’t there.”

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The shared boundary between the Howe family’s avocado farm and the Murat family’s cane farm is often a place of conversation between the families.

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March 21, 2017 12:24:34

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Benjamin Murat, Peter Howe and Skender Murat enjoy mid-morning smoko together. (ABC Far North: Mark Rigby)
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Thunder wins backing for return to national wheelchair basketball league

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Jocelyn Neumueller competed in Rio last year. (Supplied: West Lakes Canoe Club)
“We were at training when we got the call that we’d been approved to get back in the league, so we pretty much finished up training then and there and did some celebrating,” captain Adam Roocke said.”We’ve got plenty of money for this season now, and we’ve knocked off a fair chunk of next season [costs] as well, so with some additional fundraising this year we will hopefully secure enough for two seasons.”The 2017 season will open in Wollongong, as the teams converge for several games, and their 18-game season has several such rounds because it helps minimise travel and other team expenses.The Thunder captain said the Adelaide team was raring to get on the court.”There’s four players that have previously played for the Adelaide Thunder and it means so much to us,” Roocke said.”We’re all really keen now. Thunder’s potential stars:Jay Dohnt: Paralympic swimmer who won bronze in Beijing in 2008Henry de Cure: Tennis professional since 2007, with career-high rankings of 55 in singles and 36 in doublesJocelyn Neumueller: Paralympic canoeist who competed at Rio in 2016
The Adelaide Thunder had long been trying to raise $40,000 it needed to play in the competition.After success in the 1980s and 1990s, it was forced out of the national league in 2013 because of a funding cut.At a function last year, former Adelaide Oval grounds keeper Les Burdett was introduced to Paralympic swimmer-turned-basketballer Jay Dohnt.At 13, Dohnt was diagnosed with meningococcal disease and spent months in intensive care, eventually needing some of his limbs amputated.The Beijing swimming bronze medallist and London Paralympian impressed Burdett with his positive attitude to adversity and sold him on the idea of helping the Thunder return to the national competition.”I was just so impressed [with] the way he’s fronted up to life with it and his overall attitude to life,” Burdett said.”There’s lesser guys who complain about little ailments and you’ve got this kid that’s struggling to a big degree on the challenges of life and he just takes it on the chin.”

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Henry de Cure has been a tennis circuit professional since 2007. We’re champing at the bit to get back on the court.” A chance meeting has led to funding for a South Australian team to return to the national wheelchair basketball competition. (Supplied: Tennis Australia)
Burdett is a member and ambassador for Adelaide’s West End Community Fund which uses public donations to back community causes.”The Thunder had half the money and Jay gave me a figure of what he was looking for, so I took Jay’s story back to my board and talked about the character of this young man and what he was representing,” Burdett said.”It was unanimous around the board table that we would try to support him and the team.”At least we’ve got them going and next year is another year.”Dohnt plays college basketball with the University of Texas but has promised to be back in Adelaide before the national wheelchair basketball league season starts in May.Thunder well placed for two seasonsWith the West End donation and money from an anonymous donor, the team is now set for the season ahead.
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Jay Dohnt will return from playing in the US for the Adelaide Thunder’s coming season. (Facebook: Movin’ Mavs)

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By Loukas Founten

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March 21, 2017 15:22:05